January this year was my 10th "diaversary", the anniversary of being diagnosed with type 2 diabetes. In a post in 2021, I wrote about being six years in recovery. I'd hoped to be able to write about being a decade in recovery, but unfortunately in April I was told that my diabetes was back.
I knew I had gained some weight. I hadn't realised quite how much. It was suggested I went back on metformin, the most common drug used to treat type 2 diabetes, but I am almost certain metformin caused my catastrophic depletion of vitamin B12 that has left me needing injections every 3 months. And I don't want to take pills every day. So I turned that down.
Instead I started being more mindful about my eating, cutting down snacks, choosing lower calorie options, exercising more and weighing myself weekly.
Six months to the day that I started recording my weight I had lowered my weight by 11kg (almost one and three quarter stone) and I got my blood test results back. (I had the blood test on the same day as another 'blood test' - my most recent Blood Bowl game!)
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| Blood test booboo |
Back in April my HbA1c - the measure of blood glucose in your blood that indicates whether you have diabetes - was 53, eleven points above the upper limit of "non-diabetic". My most recent result was 41 - back in the "non-diabetic range".
A few things have helped me towards this. Cathy has been very supportive. We had good weather most of the summer, encouraging me to go out exercising. And in July I joined Plaid Cymru and have been out canvassing in a string of by-elections. I'd thoroughly recommend canvassing as a way of getting exercise, particularly in hilly places. (Hengoed, I'm talking about you!)
But I also want to have a mini-rant about how unhelpful some of my interactions with the health service have been. I'm saying this from a position of being in meeting after meeting where healthcare professionals have complained about how people disengage with their diabetes or don't follow medical advice. I understand their frustration but sometimes they make it bloody hard!
So, for example, in April, the practice nurse couldn't book me a follow up blood test for six months later. I was asked to phone up and book the test. That's a first point of potential failure - what if I forgot? If you don't want people to disengage, don't give them opportunities.
But I didn’t forget. I phoned up and booked a blood test, explaining that the nurse had asked me to book it. A week before the test, I had a phone call from the surgery asking why I had booked the blood test. I explained again that six months ago the nurse had asked me to book the test. The evening before the test I had another phone call asking me - again - why I had booked the test. I explained again and said I had already explained it a week previously. I got a muttered explanation that nobody had written a note on the computer.
Just an aside here, but I had a conversation on Facebook this week with a friend who is a GP who told me he didn't think GP systems could improve - the problem was too much demand on the system. But my GP surgery can waste time on two phone calls asking for information I had already provided them.
Anyway, I had the test. A week later I phoned up and asked for the results. I was told by the receptionist that "everything's fine". I asked for my HbA1c number. "We can't give out test results because we aren't medically trained," they said.
I don't follow the logic of that. They can say "everything's fine" but can't tell you exactly how fine. But I've learned not to argue with the reception staff. They antagonise easily.
So I asked what I had to do to find out my results. "You can request your results and we can print them off for you to collect. But it does take 48 hours," said the receptionist. "Great," I said, "I'd like to request my results, then."
Except then I was told I couldn't request my results over the phone. I would have to go into the surgery and fill out a form.
I'd now reached a point where - to be frank - I'd had enough of their bullshit. So I walked angrily round to the surgery (yay, exercise!), got the form and filled it out in front of the receptionist who then tried to tell me results could take six weeks until I told them they had just told me 48 hours, at which point they agreed with me that it would be 48 hours.
I phoned up three days later to check the results were available. They were, so I went in and picked them up.
Gotta admit, reading a score of 41 was even sweeter after overcoming the bureaucratic barriers to get hold of it!
Thing is, I'm an engaged person living with a diabetes diagnosis, and doing what healthcare professionals say they want everyone diagnosed with diabetes to do - actively take charge of their health and reverse their diabetes. And yet, it feels like it was unecessarily difficult for me to get the information I wanted. It was a blood test and a test score. It shouldn't have needed multiple phone conversations and forms to get that.
So, where to now? I want to keep the weight off. I'm enjoying feeling comfier in my clothes. I can get back into my favourite suit without it feeling tight. I'm hoping if I can maintain my current weight I will maintain my non-diabetic range HbA1c. I'd like to still be in recovery at my next diaversary, and the one after that, and the one after that.
I call it "recovery" deliberately. It's not a permanent reversal or remission. It's a state I need to maintain, like sobriety for people with addiction issues. The little choices I make every day add up and matter. I don't take it for granted that I have recovered from type 2 diabetes - twice - and plan to be more careful from now on.















































